On Not Withdrawing (Tales from the CCU)

My last post was about what happens when we withdraw treatment from patients. This post will be about not withdrawing treatment.

There have been many medical advances which have allowed us to learn to get patients through the very serious part of some illnesses with their lives. Sometimes a pneumonia just gets ahead of someone quickly and the "bugs" enter their bloodstream and they go "septic." The patient was active before the illness, and there's a good chance they'll be active after the illness, provided we can successfully treat them and the sequelae.

But some patients are wallowing in nursing homes, not being very active or even very verbal. Yet their friend pneumonia shows up to take them peacefully to the other side, and we wrench them violently back with vasopressors, postive pressure ventilation masks, ventilators, antibiotics. Then if that treatment is only partially successful and the patient has not made a full recovery, we flog them some more with permanent feeding tubes and/or tracheostomies.

We recently had 2 patients who were completely ridiculous ICU admissions. I'm not saying they were riduculous hospital admissions, just Intensive Care Unit ones. One was a 90+ year old woman who was intubated and put on a ventilator. An artery feeding the lower half of her body partially clotted off and left her legs bluish and very painful. No surgeon would take her to surgery to fix it - she was an AWFUL surgical candidate. She could not eat, so we fed her intravenously. As if this weren't bad enough, she was a full code for about a week there - if her heart had stopped, we would have had to do compressions and defibrillation.

Every doctor possible was eventually consulted for her case. The family wanted EVERYTHING done, even dialysis. In my very soul, I felt as though we were criminally assaulting this woman. We never did get to dialysis, and we finally made her a "no code." She passed away a couple of weeks after her admission surrounded by a family with questionable motives and in horrible pain. What this woman needed from the get-go was a morphine drip and some peace.

The other admission made me so angry. It was an 80+ year old man with severe dementia who was admitted with pneumonia. Although he was designated a "no code/active care," he still bought a bed in ICU. Active care means antibiotics, IV fluids, supplemental oxygen. The "no code" part means that if his heart had stopped or if he stopped breathing, we would have done nothing to resuscitate him. Antibiotics, IV fluids, and oxygen are things that a general medical floor can handle with ease. Instead, he took up a bed in my exceptionally busy ICU.

I don't mean to sound callous, like he was wasting our time... He was certainly an appropriate hospital admission, but not an ICU admission! And even though he was a no code, when he started to decompensate, his nurse still considered doing more and more to "save" him! I understand that death of a loved one is painful for the people left behind, but can someone please tell me the point of trying to save someone severly demented, unable to care for themselves? I can say with 100% certainty that not only would I choose to just make my own mother comfortable in that case, I would be horrified to have her flogged in an ICU with uncomfortable oxygen masks and restraints.

Some people never even really recover from pneumonia, even if they were playing 18 holes twice a week. I'm not sure if the general public thinks we can cure everything these days or what. The human body MUST be able to heal itself somewhat. Nothing we do ever actually helps the body heal - the interventions we provide merely get the human body through the storm. "Supportive care," it's called. Sometimes it works, sometimes it doesn't. I've even seen people younger than 40 succumb to exceptionally bad pneumonia despite every single high-tech intervention imaginable. Of course I guess I could say that antibiotics help heal the body, but multiple antibiotics can also cause antibiotic resistance, superimposed infections (fungal infections that crop up because we've killed off the "good" bacteria as well as the bad) and contributes to drug reactions/interactions.

I know I've ranted about this sort of thing before, but it's my pet cause. It breaks my heart to have to do the things I have to do to people I know won't get better. Don't think for a second that I don't follow orders I consider to be excessive - my job is to do that regardless of my personal beliefs. But it is also my job to educate people about the limitations of what we can do. Sometimes it's hard for the family to step back from the situation. It becomes a mentality of "beat this at all costs," like it's some sort of challenge that must be won. That's understandable in some cases.

Recently, we had a 60ish year old patient who we were trying really hard to save - we used every treatment we could possibly come up with. Unfortunately, he had a major setback and we started to address code status with the family. They maintained that they still wanted everything done, despite our predictions that he would code very soon. We thoroughly explained every possible code intervention - compressions to defibrillation, and the family wanted it all. When it was looking like he would code within an hour or two, his nurse brought the crash cart into the room, put the patient onto the backboard for CPR, stuck the defib patches to the patient and hooked them up to the powered-up defibrillator. In addition to the ventilator and the continuous dialysis machine, the defibrillator was beeping with every heartbeat.

Although we had already explained each of these procedures in detail, the family was horrified to actually see the equipment fired up and ready to go. The nurse explained what everything was for, and what it would do, and the family immediately said that we would be doing none of it. We removed the crash cart from the room, but continued with the ventilator and dialysis machines. About an hour later, the patient's heart rate slowed and then stopped. The family was all there and although it wasn't the most peaceful death with the machines still around, it was better than having an electric shock and someone pounding on his chest.

The nurse made the right call with that particular family. He'd already had a good relationship with them and it's a 100% certainty that the patient would NOT have survived. I can't help but to think that we somehow imposed our beliefs... but we also advocated for the patient.... for his right to have the best death possible. It's a pretty difficult position to be in.

Progress Notes (8)

Progress Notes

When I worked Hospice, as well as ICU and ER, it never ceased to amaze me how much education people need on this issue! They think "no code" means "no care". They think a ventilator is a cure-all. It's disgusting.

Physicians can educate, but they don't have the time. Instead of hiring office RN's to educate about these issues (hopefully, before the stressful illness), they hire MA's.

I don't see the situation improving.

added by BeerMary on July 4, 2003 10:45 AM

Wow! I was amazed to read your diary. Your latest entry, you wonder why we don't just the obviously die instead of going through all these measures? As somebody whose died 3 times and was resucitated I will tell you what you may be missing. Because 5 more minutes is an entire life when your dying and it's worth being here 5 more minutes. Take a look around and see life, more dying people see it then those who will live much longer.

added by MoonBlonde on July 6, 2003 10:55 PM

I am not against resuscitation in the least. I am sometimes against resuscitating certain patients.
I'm assuming that you're young or middle aged; in that case, absolutely! If you're otherwise healthy, you definitely should be a candidate for all heroic measures.

The patients I get in ICU are not romantic. There are rarely scenes where patients have nice peaceful deaths in which they see the light and die with smiles on their faces.
My patients are usually very very old, 70's to 90's and have multiple medical problems.
When I have a 94 year old patient who lives in a nursing home come in with tissue-paper thin skin, mulitple skin tears, and NO circulation in the entire lower half of her body,
I sort of have to wonder what her quality of life is going to be with all these heroic measures.
So we put her on a respirator, withhold pain medication per the family's request, put tubes in her neck, her nose, her mouth, her bladder, her rectum, her arms and watch her organs fail one by one despite everything we're doing, yet we STILL have to go on because the family won't let her go.
Is this really someone that you think should be shocked and have chest compressions? She wasn't romantically seeing a life that I wasn't seeing - she was in horrendous pain from lack of circulation and from all the tubes hanging out of her body.
THESE are the kinds of patients that should be allowed to die peacefully.
Despite our best efforts, she died, and thank God.
Because we kept her body alive, her lower half rotted and stank, her bottom was raw and excoriated from the frequent cleaning and wiping we had to do, the skin tears
on her arms constantly drained extra fluid that her kidneys could not get rid of, and she had numerous sores. Her family finally consented to small amounts of pain medicine.
THIS is the type of patient that I am heartbroken to have to "do everything" for.
I could have told you at the outset that she was not going to survive; her body, at 94 years old, was just trying to die. 94 years is long enough.

I hope I've been able to clarify my position.

added by geena on July 7, 2003 12:16 AM

Geena, I totally understand your position and would feel the same way. I once worked in a long term care facility where a lot of patients were on tube feedings, some of them responsive only to deep pain and having the tube changed (this was when NG tubes were being used mostly, not gastrostomy tubes.) There were a few patients that I felt like I was torturing every month when I had to change their tubes. It would have been so much more compassionate to "let nature take its course" in some of those cases. There was one I remember in particular who ended up having large doses of IM Valium each time because he reacted so violently to trying to put the tube in. I felt awful about having to do that to him.

People defininely need education about what DNR vs. full code really means. I often thought the families who insisted on having everything possible done when the circumstances were like you described were carrying a lot of guilt about their relationships with the person who was dying. As long at they kept the person alive, they didn't have to deal with the guilt fully.

added by suzi on July 10, 2003 11:06 PM

I hope you are at my bedside if I am ever in that situation. xxxooo

added by AuntLorri on July 17, 2003 11:58 AM

The reality of the machines and the crash cart...sometimes families need to see those in order to fully appreciate what all that means to the patient...before they can decide what to do.

I know, for myself, that I'll have everything spelled out well in advance...and if I have to carry a copy of the directives around with me to make sure my wishes are heeded...so be it!

added by Da Goddess on July 25, 2003 7:26 AM

Having read the previous comments, I guess I'm lucky.

A patient, male, 68, 95% blockage in the LAD, history of myocardial infarct, arrested as I arrived at the ward, and was resuscitated at per my instructions. 12 hours later, the patient was awake, aware, and fully conscious. However, when the cardiologist informed me that the left side of the patient's heart was akinetic, with no salvage possible, treatment was withdrawn, with the patient's informed consent. Morphine was given 'to assist breathing', and when the patient's breathing became laboured, more was administered.
My Father had already choked to death once 12 hours earlier, no need for him to be aware of it when it happened again.
The Family, the Patient, and the Medical team must give 100% until there's zero hope, but then it's equally important to know when to stop. In Dad's case, it was an easy call for both he and I to make.
I miss him though, terribly.

added by Alan E Brain on May 27, 2004 3:53 AM

I just found this really old post of yours on "withdrawing treatment." It's great you are bringing these cases to light so that others may learn from them. I hope we will soon shift away from using the terminology "withdrawing" care or treatment, however. I think of it as shifting goals of care. We are still treating symptoms and always provide care even when we are letting natural death occur. I think focusing on this change in the terminology within our own medical culture as providers will help families, patients and yes, other health care providers, make this shift, too. Thanks so much for sharing these experiences - and your frustrations which I can definitely relate to - in your blog.

added by Mia on April 18, 2005 3:35 PM

So, what brought you to the hospital today?














Absolutely Not today




AddThis Social Bookmark Button
AddThis Feed Button



Alltop. I don't know how I got there either.


Healthcare

View blog authority