Hoping This Won't Be A Mistake (Tales from the CCU)

Recently, I took care of a 60ish man who had cardiac arrested at home, with no CPR done until the police showed up ~7 minutes later with an AED. That's a long time with no oxygen. When I had him, he was on a ventilator and was posturing. It didn't look good. His family kept talking about the future though (as in, "Dad didn't talk much about his doctor visits [he was being treated for borderline diabetes] but I guess we'll be going with him from now on!). I figured that there was no way in the world that this guy would wake up. He was taking breaths on his own, but wasn't responding.

Neurology was consulted, and we simply waited, doing as much supportifve care as we could. The next day, he was more responsive and was extubated. The day after, he was mostly coherent, conversant, and aware! I was completely amazed and VERY happy. The neurologist came in that night to examine him and sat out at the desk writing her progress note. She was talking about how gratifying it was to finally see a case end up positively.

Now flash back to about 3 years ago. I'd been at my current job only two months and had to admit a young woman that was my age. She had been up on the medical floor with some sort of viral thing, and just simply went unresponsive. No one knew what the heck was happening, only that she was not awake anymore. She ended up staying on our unit for about a month, and in that time got a tracheostomy and a PEG tube. She was eventually sent up to our Sub-Acute unit, which is like a nursing home within a hospital. Most every patient up there is trached on a ventilator and gets lots of rehab, which may or may not be working.

For the last 3 years, I have checked on the computer for this patient's orders to see if she has gotten any better. She had only been married for about a year; was her husband still with her? Visiting her every day as he had in ICU? 3 years can be a long time. Her prognosis wasn't the greatest; apparently she had developed some sort of nervous system thing where the myelin sheath of the nerves (the slippery coating that allows impulses to travel so quickly and effortlessly) deteriorated. From what I can tell, she has remained unresponsive and has been getting physical therapy consistently for the last 3 years.

So anyway, this neurologist was at the desk for this other patient, talking about how happy she was that this patient had turned around and said, "Hey, do you guys remember that young patient that was a hairdresser...?" and I immediately said the patient's name. I had been intending on asking this particular doctor about my young patient for a long time, but just never had. I was VERY eager to hear any news about how she was doing.

Well, this is how she's doing: She WOKE UP! She interacts with others, recognizes her husband, can move her arms around. She can't walk, but it's definitely looking more and more like a possibility that she may be able to in the future. I asked how that was possible and the doc theorized that since she was young, her myelin was able to regenerate itself. Or something. And her husband still visits religiously. I can't tell you how immensely happy this all makes me. I have no idea why I have thought so much of this particular patient over the years; maybe it's because it could have easily been me. Or someone I knew. All I know is that some weird thing happened to her, and her life was robbed from her, leaving only a shell, a body. It was so devastating to the family. I can still remember the desperation on their faces every time they'd walk onto the unit, hoping for some change in her condition.

I hope she continues to do well. I hope she can go home someday. But here's the explanation for the title of this post: This sort of situation isn't the norm. People who lack oxygen for more than a few minutes usually never "recover." So my patient who cardiac arrested may have just had barely-perfusing rhythm until the cops showed up. Who knows? All I know is that the typical patient who suffers brain damage from anoxia (lack of oxygen) ends up fairly vegetable-like or very disabled. I have no idea if these two stories will induce "false hope" into someone surfing around who happens to have a loved one who is comatose, but ya know... I have every right to be ecstatically happy that these two patients have at least partially recovered following extenuating circumstances. These two stories are what keep me going. They provide a point to my profession. A reason to keep going into work.

Sometimes we win.

Progress Notes (7)

Progress Notes

The demyelinating disease sounds like Guillian Barre Syndrome.

The victories are the reason med people go to such lengths to resuscitate. Sure, it's futile in probably 90% of people who will end up comatose and dependant, but there's always hope.

Acutally, this raises an interesting medico-legal question about resuscitation and whether it's kinder to let the patient expire to save on probably what will be horrendus medical expenses down the line.

I hope I never have to make that call.

added by inspire on October 22, 2003 9:23 AM

I know it wasn't Guillian Barre... was not a progressive weakening so much as a all-of-a-sudden unresponsiveness.

The neurologist told me the name, but I don't remember. At the time we figured on some sort of encephalopathy.

I've posted before on resuscitation and how I feel about it. It does have its' place, but I agree that it can do more harm than good.

added by geena on October 22, 2003 1:38 PM

First, I've been enjoying your blog for a long time.

Second, I've got cool one of my own.

For about 8 years, I did pet therapy at Baylor Rehab, here in Dallas. We worked with head injury and stroke patients. In addition, we also did visitation at their long term care center.

Many of the patients there were in some form of persistant vegative state.

I will never forget one. We had been visiting him for several years, every weekend. Every time we were there, his whole family was there. His young sons, elementary age, wife, and other members of the extended family. I have no idea if they were ever there any time but on Saturday afternoon but they were there.

One of the reasons I remember him, is that he used to grab a hold of my dog's leash. He never responded to the dogs -- in fact, when we got to his room, my dogs entered the boys. But he would grab on the leash and wouldn't let go. He'd hold onto it 5 to 10 minutes. He wasn't agitated, that's just what he did. And we couldn't get him to let go. He just would.

So here's the point. After YEARS, and I don't remember how many but I think it was over 5, one morning he woke up when they brought him, his breakfast, and he was awake and aware! He had no clue where he was at, but came to the conclusion he must be in prison -- which in a way he was. The staff told me that he remembered everything before the event but not what put him in the hospital or what happened after.

The family came and took him home and I have no idea what became of him after that. It was pretty cool though.

added by Kathleen Weaver on October 22, 2003 9:39 PM

This is a great story. Thanks so much for sharing. This is a part of why we just cannot assume too much about these patients. To be blunt, it is impressive to see an ICU nurse able to maintain this ability to get "ecstatically happy." Don't be semi-apologetic about this post, you should be proud that you're clinging so tightly to your humanity.

added by Craig on October 23, 2003 3:48 PM

Its always nice to hear the good stories. As a Paramedic, I rarely get to see how Cardiac Arrests, et al turn out. I know that almost none of them ever leave the hospital, but its nice to know some do from time to time.

added by Doc on October 27, 2003 7:21 AM

I posted this one up on the notice board at my Uni so that the other student nurses could read it. Its great to read a post thats really positive.

added by Carla on October 29, 2003 4:51 PM

I can understand the struggle, Geena. There are so many people out surfing around, you never know what "information" they'll find online and take in to the doctor.

It's one reason I couldn't let that one person go on writing about his miraculous 2 month recovery with ALL, pancreatic and CNS cancer.

The difference is: you're reporting what happened and you're honest about the odds of these kinds of recovery happening. When they do occur, it's like winning the biggest lottery ever!

I'm glad your patients had such great outcomes.

added by Da Goddess on December 4, 2003 1:32 AM

So, what brought you to the hospital today?














Absolutely Not today




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Alltop. I don't know how I got there either.


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